{"id":337,"date":"2017-07-28T12:25:15","date_gmt":"2017-07-28T12:25:15","guid":{"rendered":"https:\/\/news.dorsetforyou.gov.uk\/dorset-care-record\/?p=337"},"modified":"2019-03-21T15:05:32","modified_gmt":"2019-03-21T15:05:32","slug":"dorset-care-record-case-study","status":"publish","type":"post","link":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/2017\/07\/28\/dorset-care-record-case-study\/","title":{"rendered":"The development of the Dorset Care Record"},"content":{"rendered":"<p>Future Care Capital reports on the Dorset Care Record following an interview with our SRO Dr Phil Richardson as part of its report on the progress of national care records<!--more--><\/p>\n<h2>The Dorset Care Record<\/h2>\n<p><strong>Interviews with: Director of Design and Transformation at NHS Clinical Commissioning Group and Dorset Care Record Senior Responsible Officer \u2013 Dr Phil Richardson<\/strong><\/p>\n<p>The Dorset Sustainability and Transformation Plan identifies three key challenges to overcome in the five years to 2023: the health and well-being gap &#8211; whereby health inequalities impact upon different groups of Dorset residents; the care and quality gap &#8211; whereby some services do not meet national quality standards and result in a variation of quality; and the finance and efficiency gap in health services &#8211; projected to be \u00a3229 million per annum by 2023. The Dorset Care Record (DCR) is considered critical in overcoming these challenges and working towards achieving a \u2018digitally-enabled Dorset\u2019 (Dorset Sustainability and Transformation Plan, 2017).<\/p>\n<h3>Development of the Dorset Care Record<\/h3>\n<p>In 2014, clinicians in Dorset expressed a desire to share information with partners and it<br \/>\nbecame clear that an integrated approach to data sharing across organisational boundaries<br \/>\nwas key to enabling new models of care. Coupled with thinking nationally around the rollout<br \/>\nof Summary Care Records, of which Dorset was an early adopter, and the promotion of patient access to records, the DCR was identified as the preferred solution by key stakeholders.<br \/>\nDevelopment of the DCR began in 2014 and partners anticipate it being rolled out to participant organisations in Autumn 2017.<\/p>\n<h3>Overview of the Dorset Care Record<\/h3>\n<p>The DCR will draw selected information from clinical record information together to provide<br \/>\na single electronic record which may be viewed by approved professionals working across<br \/>\nthe health and care sector. Part-funded by NHS England\u2019s Integrated Digital Care Fund, and<br \/>\nsupplemented by funding from partner organisations, the DCR has been developed with<br \/>\ntechnology partner Orion Health.<\/p>\n<p>&nbsp;<\/p>\n<h3>Design of the Record<\/h3>\n<h4>1. Access<\/h4>\n<ul>\n<li>The organisations with permission to access the DCR are: Dorset GPs, NHS Dorset<br \/>\nClinical Commissioning Group, hospitals (Poole Hospital and Royal Bournemouth and<br \/>\nChristchurch Hospitals), Dorset HealthCare University Foundation Trust (community and<br \/>\nmental health trust) and councils (Borough of Poole Council, Bournemouth Borough<br \/>\nCouncil and Dorset County Council). A longer-term aspiration is to extend the range of<br \/>\norganisations able to access the record to include additional health and care organisations<br \/>\nsuch as hospices and nearby NHS facilities &#8211; providing the record\u2019s information sharing<br \/>\nsecurity criteria are met.<\/li>\n<li>Geographical reach of the DCR: only participating organisations within Dorset will be<br \/>\nable to access the DCR, but the project is working with Salisbury, Yeovil and Southampton<br \/>\nhospitals to explore the scope for them to add information to the record in future, by<br \/>\nvirtue of their proximity and role within the Dorset health ecosystem.<\/li>\n<li>Secondary data access: there are no plans or provisions in place to share the DCR with<br \/>\nanyone other than professionals directly involved in an individual\u2019s care.<\/li>\n<\/ul>\n<h4>2. Data Sharing<\/h4>\n<ul>\n<li>How data is shared: selected data is drawn from an individual\u2019s records and brought<br \/>\ntogether in a single electronic record &#8211; this record is then shared across a range of medical<br \/>\nsettings and the three local authorities involved in the project.<\/li>\n<li>Data included in the record: contact information and clinical records are shared,<br \/>\nincluding:<br \/>\n\u25aa patient contact details and care needs<br \/>\n\u25aa diagnosed conditions<br \/>\n\u25aa medications<br \/>\n\u25aa allergies<br \/>\n\u25aa test results<br \/>\n\u25aa referrals, clinic letters and discharge information<\/li>\n<li>Information Sharing Standards: the Dorset Information Sharing Charter (2015) governs<br \/>\ndata sharing by professionals involved in the DCR. The DCR generates an access log<br \/>\nrecording who viewed it, when they viewed it and what information was accessed.<\/li>\n<\/ul>\n<h4>3. The Role of Citizens<\/h4>\n<ul>\n<li>Consent: everyone registered with a participating organisation will automatically have a<br \/>\nDCR but sharing of the record works on an opt-in consent basis (i.e. people will be asked for<br \/>\nconsent to share their record when they first visit their GP or another medical professional).<br \/>\nIndividuals will be offered multiple consent options to choose from \u2013 they can provide<br \/>\nblanket consent enabling any professional involved in their direct care to access their record,<br \/>\ngrant consent a to specific professionals, and choose to allow access either indefinitely or<br \/>\nfor a specified time period. If an individual doesn\u2019t provide consent for their information to<br \/>\nbe shared, the contents of the DCR pertaining to them will remain hidden, with the option of<br \/>\nsharing the record in future. In keeping with the law, a patient\u2019s carer or relative can provide<br \/>\nconsent on their behalf should a patient lack the capacity to provide consent.<\/li>\n<li>Public engagement: as the development of the DCR was linked to Dorset\u2019s Clinical<br \/>\nServices Review, the views of thousands of patients were heard and fed into its<br \/>\ndevelopment. Leaflets, including an easy read version, have been produced to explain<br \/>\nthe key features of the Record. The DCR also benefits from a comprehensive<br \/>\npublic-facing website.<\/li>\n<li>Public access to the record: individuals will not be able to access the DCR in electronic<br \/>\nformat \u2013 although their record can be provided in hard copy format in keeping with the<br \/>\nDPA \u2013 but the DCR has plans to launch public access to the record in 2019.<\/li>\n<\/ul>\n<h3>Future Plans<\/h3>\n<ul>\n<li>Extending the scope of information entered into the DRC: a number of additional<br \/>\ninformation sources are being considered for inclusion in the DCR which could contribute to a planned extension of the record from a patient record to one which more broadly covers the whole population.<\/li>\n<li>Social care information: initially social care professionals will only have read-access to the<br \/>\nDCR &#8211; the next step is inclusion of social care information, including contact information and<br \/>\ncare plans.<\/li>\n<li>Additional detail from healthcare organisations: for example, looking to include access by,<br \/>\nand data from, hospices and neighbouring hospitals.<\/li>\n<li>Wearables\/patient contributed data: once an integrated digital care record is in place,there is the potential to incorporate information from additional data sources, including from wearable devices or remote monitoring systems. This could include connecting remote<br \/>\ncardiac monitors, for example, to better support people with Atrial Fibrillation who are at<br \/>\nvery high risk of stroke if the condition is not well-managed &#8211; through the DCR they can be<br \/>\nconnected to a person\u2019s integrated record to provide clinician access to real-time data.<\/li>\n<li>Extending access to the DCR: there are plans to make information available to all partner<br \/>\norganisations signed up to the record, including social care organisations, in future. This will<br \/>\nenable the production of a joint care record or care plan, whereas each organisation creates<br \/>\nits own care plan, using its own system, at the moment. Public access is expected by 2019,<br \/>\nand is widely regarded as an opportunity which could lead to clinicians entering into digital<br \/>\nconversations with service users \u2013 empowering individuals<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Future Care Capital reports on the Dorset Care Record following an interview with our SRO Dr Phil Richardson as part of its report on the progress of national care records<\/p>\n","protected":false},"author":1856,"featured_media":170,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":[],"categories":[4],"tags":[],"jetpack_featured_media_url":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/files\/2017\/02\/image-4-e1487770887333.png","_links":{"self":[{"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/posts\/337"}],"collection":[{"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/users\/1856"}],"replies":[{"embeddable":true,"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/comments?post=337"}],"version-history":[{"count":7,"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/posts\/337\/revisions"}],"predecessor-version":[{"id":1055,"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/posts\/337\/revisions\/1055"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/media\/170"}],"wp:attachment":[{"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/media?parent=337"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/categories?post=337"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/news.dorsetcouncil.gov.uk\/dorset-care-record\/wp-json\/wp\/v2\/tags?post=337"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}