How myDCR will help those suffering from Motor Neuron Disease

Annemieke Fox, UHD MND advanced healthcare practitioner

Advanced healthcare practitioner coordinator Annemieke Fox’s role at University Hospitals Dorset is to support people with Motor Neuron Disease. Here she talks about her role and how myDCR will benefit clinicians and patients

“My job is to support people with Motor Neuron Disease (MND) and their families from diagnosis  throughout their journey.

“I’m currently using the Dorset Care Record to access information about patients from their community healthcare professionals, which I wouldn’t normally have access to through the hospital records.

“People with MND often have varying levels of disability, which might make accessing their myDCR challenging for them.

“So the Circle of Care functionality by which they can provide consent for others – for example carers, families, friends and anybody else that they wish to have access to their myDCR will ultimately improve the care that patient receives,” she added.

  • Motor Neuron Disease is an uncommon condition that affects the brain and nerves. It causes weakness that gets worse over time. Although there’s no cure for MND, there are treatments to help reduce the impact it has on a person’s daily life.
  • This case study is based on Annemieke’s interview for the myDCR video

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